Recently my dystonia has been very active, leaving me searching for ways to deal with its interference in my life. I am under the care of a team of medical professionals, yet sometimes I am left to fend for myself. That is okay, in part due to my medical training, but sometimes it gets tiring. However, looking at it from a learning point of view helps.
My medical team's idea of treating it, is medication. Gabapentin, Acetazolamide, and Baclofen taken three times a day. Benadryl is taken in the evening as well to try and ward off the evening attacks of paroxysmal dystonia. This leaves me extremely tired, and wanting to sleep the day away. Unlike taking Topamax and Tegretol daily I can at least think clearly. I just think slower.
Having functional hands is essential in my line of work (veterinary medicine). I perform surgery, draw blood, give injections, palpate things and more. The use of my hands is of great importance to me. Reducing damage to my foot is also important. I got permission to brace a few key joints to see if it helps.Yet it makes me sad to do so.
I've had to adapt to a new way of life more times than I care to count. But I end up adapting just fine. So the sadness will pass and it will be my normal.
Just how many new sets of normal do have to have in life?
Normal is a subjective term. Ha Ha
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