However, to a great extent, I'm not comfortable with myself. Like many other patients with chronic illness, I try to hide its effect on me. More so now then I have before, despite having Jake with me all the time as a visual indication something is "wrong" with me. I don't like being hooked up to tube feeds while trying to be professional. I don't like the edge of my central line dressing peaking out from my collar, and I really don't like having neurological symptoms out in public. It would be easy to be a hermit and not go anywhere, but I want to be productive. Even if it means on bad days just meeting a friend at a coffee shop. Especially now that Jake is writing a book about them (I'm his ghost writer).
I'm also not comfortable about the fear I have regarding my medical issues. You can't be comfortable with yourself, if you aren't comfortable with your emotions. I can talk about logistics of getting ready to travel to Switzerland for Christmas, what meds we are changing and other ideas. But I've never opened up to anyone about my fears. The future is so uncertain, that I live mostly day by day. Predicting what I will be able to do next week, next month, next year is hard. It makes me fear for my job, whether the plan I have for practicing veterinary medicine is wise, and exactly how hard to push myself in both.
So while I am comfortable enough to hold a review session wearing jeans, a hoodie and a baseball cap I'm not comfortable in my own skin.

You are dealing with HUGE issues that would overwhelm anyone. You haven't learned to lean on others very well, due to both your upbringing and your personality. You take care of others and don't know how to have others 'take care' of you. It's great that you are able to do some writing to gather your thoughts and feelings. Life is complicated, and yours is magnitudes more complicated than most.
ReplyDeleteI think you'll get more comfortable with the visual aspects - you'll be desensitized :)
You have many friends, lean more!